Remembering February


For close to a year the month of February has been looming just outside of my conscious.  February 21, 2013 will be the one year anniversary of my mother’s death and the 12 year anniversary of my father’s death.   I have prepared myself to be sad.  But, what I haven’t prepared myself for are the down times leading up to that day.

On January first of 2012 I was celebrating the start of the New Year with friends.  We were at a bar having chicken wings and beer.  That was when I received the first call about my mother not doing well.  With the help of my sister Roxann, who flew in from Georgia, we spent nearly two weeks watching my mother slowly succumb to pneumonia.  Then, miraculously she pulled herself back from the brink of death.  Bewildered from what we had prepared ourselves for, Mom’s death, and reality, Roxann wearily went home.  As January faded into February Mom improved to the point where some days she didn’t need the oxygen.

scan0001One weekend in February, I visited Mom on a Friday.  I even took her picture to send to my sisters because Mom looked so good after her close call with death.  Unbelievably, that following Monday I was called by the nursing staff because Mom was once again ill.  The change in Mom over the weekend was startling.  I saw the look of panic in her eyes as she struggled to breathe.  With the help of the nurse practitioner, who prescribed, and then the nurse, who administered the morphine, we were able to ease Mom’s discomfort and fear.  I sat with her most of the day until she fell asleep.  I left knowing I would need to get many tasks accomplished before I began, once again, waiting with Mom for death to finally relieve her of her painful existence here on earth.

The next morning, as I prepared myself and my home for the long hours of sitting with Mom the nurse called.  Mom was worse.  Since Mom’s illness the month before, her children had resolved not to continue the brutal cycle of stopping the pneumonia, with antibiotics, only to have the illness return very shortly afterward.  We were committed to shortening Mom’s downward spiral towards death for her sake, instead of prolonging her dementia bound life for us.  But, I won’t lie it was difficult to see my mother laboring to breathe and the fear in her face.  I gave the nod and morphine was administered so that she could rest easily.  That afternoon the nurse practitioner told me this was it; Mom would not recover this time.  I called Roxann.  She made plans to return to Upstate New York.

As suddenly as Mom had become ill, she died.  She died before Roxann could arrive.  She died within 48 hours of my initial phone call.  No one on the staff, not even the nurses, thought she would die that quickly.  Yet, I had a feeling all of that day, because I sensed my dad in her room with me.  I understood that he had come to take her to their afterlife.

I remember many aspects of those long days in January and the few days in February that led to our extended family standing in a grave yard, once again sheltering against the biting cold winds of an Indiana winter.  It is with those days ingrained in my subconscious that I sometimes find myself crying for no apparent reason.  Why certain songs can turn a bright day into one of melancholy.  My conscious mind continues to check items of my list of tasks to accomplish.  I go to work.  I make dinner.  I admire the beauty of the winter blue sky.  I enjoy the company of friends, the stimulation of a good workout.  Still, I never know when or why the tears will come.  They just do.

Helping Yourself Help


I have been thinking lately about decisions I made for my mother.  During my day, I often run into people who are in some stage of being a caretaker for a parent.  Some are in the beginning stage of denial.  Some are in the panic stage of, what do I do now?  Others are in the end stage and either silently, or out loud, are praying for an easy death of their parent.  I recognize all of these stages, because, I experienced each one.

As I’ve said before, I don’t mind listening and giving advice when asked.  Sometimes the obvious is very clear to those looking in, but not clear at all when you are the participant.  Recently, I heard of a woman who was trying to work full-time and take care of her mother, who lives alone.  Not only does she live alone, but she cannot cook for herself, can’t get herself to the bathroom, can’t get herself dressed, the list continues.  Yet, this loving daughter is trying to figure out how to take care of her mother without bringing in extra help or removing her from her home.  As I write this, the situation sounds very obvious as to what needs to be done.  But, put yourself in that role and all kinds of emotional problems surface.  There are promises made: Mom, I won’t put you in a nursing home.  Of course I will always take care of you.  There are financial issues that come with many questions.  Can my parent pay for care?  What if my parent refuses to pay, but I need the help?  Can I take over financial control?

Personally, the most important conclusion I came to, after taking on the role of caretaker, and spending months becoming more and more stressed was to realize, I can’t do this on your own.  Struggling, without admitting you need help, leads to problems later.  I found, reaching out to others in the same situation helped me tremendously.  As I entered my caretaker role, there were others in the midst of it.  These people understood the ends and outs.  They were aware of doctors, facilities, and organizations that could help with guidance on what to do and what help was available.  They knew tricks on how to just get through the day.  For many women, and I say women because the caretaking generally falls to us, the decision to admit we need help can be covered with guilt.  But, guilt should not be involved.

As a caretaker, your first step is to take care of yourself.  If you fall ill or get hurt, then everyone is in trouble.  Bringing in help; taking hours, days, weekends off is not selfish, it is putting your role as caretaker first.  When you are rested then your patience comes easier.  The skills needed to handle your tasks flow smoothly.

The worst day of my life, and I can also say for my sister, was the day we took our mother to an Assisted Living Home for Dementia Patients.  Like many of her generation, Mom had a pre-conceived notion of a “nursing home”.  It took us hours to get her out of bed, dressed and into the car.  I still get emotional when I think of that day.  But, and this is huge, our mother grew to enjoy her new home.  She found she liked the independence of being out from under my control.  She made friends; the staff grew to love her.  As for our relationship, it returned to more of a mother-daughter one.  Since I was no longer trying to get her to take her medication, to bath, to eat, to go to sleep, to get out of bed, we could enjoy each other.  I took Mom out to lunch, we got her nails done.  She came to my house for holidays.  When she no longer felt comfortable doing those outings, we did puzzles and watched TV.

Looking back, each day seemed endless at times.  But, now I know, making the most of what time is left, and providing the best care, is essential.   Even if it means letting that care come from someone else.  Asking for and excepting help are all part of a good caretakers role. In the end, the decision to let go of some of my control was the best one I made as a caretaker.